The next biggest is getting the "normal" people in your life to understand what is happening to you and how it is changing you and how you live daily. Even sincere people can exercise great ignorance and cruelty with their "help" and "suggestions". I have found that to be true - even from well meaning church family who didn't have a clue.
When I first became ill, I was my own worst enemy. I was in denial and refused to believe I needed to alter my life - even though I was so fatigued I could barely lift my head off my pillow. I was a young mom with a young son and I was determined to be "super mom", "super wife", "super daughter" and super anything else that came my way. That's what happens when you're the oldest, perfectionist, anorexic, OCD daughter in the family. (Do we see a pattern here for stressors affecting the autoimmune system?)
Eventually I had to cry "uncle" and admit I was chronically ill, needed to take better care of myself and become an informed and proactive patient. And, when you do, the "normals" around you will not always like what you're doing and the changes you make.
Today I'm sharing (with permission) an open letter written some time ago by Ricky Buchanan. Ricky has CFS*/fibromyalgia. I have seen the letter floating around the internet for sometime, but I've gone straight to Ricky's website for the original. This letter rang so true with me, it was as if Ricky had observed my life from afar and penned the letter for me. The part which really touched home with me concerns "normals" giving you "cures". Augh!! As Ricky says, if there was a cure out there that worked for all of us, don't you think we'd all know it by now - and our doctors, too?
As you read Ricky's letter you can insert you chronic illness, disorder or disability. The jest is still the same - and, that would be the foundation of what we would like "normals" to understand about our lives.
© 2015 Beverly Hicks Burch All Rights Reserved.
Open Letter to Those Without CFS/Fibro...
by Ricky Buchanan (*or insert you illness into the title. BHB)
Having CFS means many things change, and a lot of them are invisible. Unlike AIDS and Cancer, most people do not understand even a little about CFS and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ...
... These are the things that I would like you to understand about me before you judge me...
Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day flat on my back in bed and I might not seem like great company, but I'm still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I'd still like to hear you talk about yours too.
Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. I may be tired. I may be in pain. I may be sicker that ever. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome.
Please understand that being able to stand up for five minutes, doesn't necessarily mean that I can stand up for ten minutes, or an hour. It's quite likely that doing that five minutes has exhausted my resources and I'll need to recover - imagine an athlete after a race. They couldn't repeat that feat right away either. With a lot of diseases you're either paralyzed or you can move. With this one it gets more confusing.
Please repeat the above paragraph substituting, "sitting up", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what a fatigue-based illness does to you.
Please understand that chronic illnesses are variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!". If you want me to do something, ask if I can and I'll tell you. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please don't take it personally.
Please understand that "getting out and doing things" does not make me feel better, and can often make me seriously worse. CFS may cause secondary depression (wouldn't you get depressed if you were stuck in bed for years on end!?) but it is not caused by depression. Telling me that I need some fresh air and exercise is not appreciated and not correct - if I could do it, I would.
Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm doing something. CFS does not forgive.
Please understand that I can't spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well. But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn't mean I'm not trying to get better. It doesn't mean I've given up. It's just how life is when you're dealing with a chronic illness.
If you want to suggest a cure to me, please don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with CFS then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with CFS, if something worked we would KNOW.
If after reading that, you still want to suggest a cure, then do it, preferably in writing, but don't expect me to rush out and try it. If I haven't had it suggested before, I'll take what you said and discuss it with my doctor. He's open to new suggestions and is a great guy, and he takes what I say seriously.
Please understand that getting better from an illness like this can be very slow. People with CFS have so many systems in their bodies out of equilibrium, and functioning wrongly, that it may take a long time to sort everything out.
I depend on you - people who are not sick - for many things.
But most importantly, I need you to understand me.
*CFS = Chronic Fatigue Syndrome
No comments:
Post a Comment